Wednesday, July 30, 1997
(July 22) Memory is not something to be taken for granted, as Alzheimer's
sufferers and their families know all too well. People who have no trouble
remembering the distant past or where they left their eyeglasses, or even
where they live, don't appreciate how losing one's memory can affect mood
and self-confidence.
"I used to think that pain was the worst thing for an old person to
bear, but I was wrong," says Bernice Schwartz, a licensed clinical
social worker and psychotherapist. Schwartz recently launched the country's
first English-language "memory club" for those suffering from
various degrees of dementia or cognitive disabilities due to Parkinson's
disease or a stroke.
"What they most fear is losing control - the fear of the unknown.
That is much more terrifying than pain."
Schwartz, who came on aliya from Boca Raton, Florida, 10 months ago with
her husband and three children, was eminently prepared for coordinating
a memory club. A graduate of the San Jose State University School of Social
Work, with a psychology degree from Indiana University, and extra courses
in nursing and therapeutic counseling, Schwartz worked for many years in
US hospitals and geriatric institutions as a bedside social worker.
"That means I'm somebody who listens. I listen for strengths. Every
human being has skills, even if they're very frail and disabled."
When acquaintances heard of her credentials, they recommended that she
meet Leah Abramowitz, coordinator of Melabev (Community Clubs for Impaired
Elderly). After a short meeting, Abramowitz immediately mobilized her for
the establishment of a twice-weekly English-language memory club in the
capital on the model of the thrice-weekly Hebrew-speaking one, plus a support
group at Shaare Zedek Hospital for patients' families.
Schwartz notes that some physicians fail to appreciate the consequences
of their instructions that an elderly patient at the onset of dementia
be sent to an institution.
"These are people who have kept their toothbrush in the same place
for 60 years; doctors must understand what it means for them to suddenly
leave home and move to a geriatric institution."
There are 26 types of dementia, notes Schwartz, but Alzheimer's disease
- the incurable progressive disease that is reaching epidemic proportions
because of an aging population - is responsible for more than half of all
dementias.
During the earlier stages, patients can be helped to remain at home under
family supervision if they are taught to cope with growing forgetfulness.
That's where the memory club comes in. Schwartz goes along on the minibus
that collects the participants who can't get to the club - a renovated
shelter in the Givat Mordechai quarter - by themselves.
"I call each of them the night before to remind them. It gives them
assurance and they look forward to it. And when they see my familiar face
on the bus, they immediately relax, even though none of them could tell
me the phone number or address of the club and some can't even remember
where they're going."
They arrive about 9 a.m. and eat a full breakfast, taking part in activities
until 12:30, when the minibus takes them home.
Although memory loss can't be cured, patients can be helped to retain more
of their memories, says Schwartz.
"The trick is to use as many of your senses as possible. If you tend
to forget where you put your keys, the next time you put them down, etch
in your memory the way it looks, the touch of the metal, and say out loud
exactly where you have placed them. Concentrate and analyze why you're
putting them in a certain place. This exercise can really help."
The club also has the use of a computer, with programs specially designed
to promote short-term memory in older people.
Other activities include shmoozing, arts and crafts, family and holiday
celebrations and discussions of their problems.
"It isn't a day-care center for the elderly, but a memory club to
learn to enhance memory."
Schwartz finds that before too long, participants regain their self-confidence.
"Their personalities begin to come out and shine, and their sense
of humor comes back because their anxieties are reduced. And, wonder of
wonders, when this happens, their memory starts to come back, as if a fog
had lifted. This part is very satisfying for the staff and the volunteers
who run the club."
Elderly people are very hard to please, she continues. "To please
a child, you just have to give him a cookie and a balloon. If I did that
with my club members, they'd laugh me out of the place. You have to earn
their respect."
Running the club in the English-speaking participants' native tongue is
important, even if they know some Hebrew. "Because we're dealing with
memory, using the primary language is vital," she stresses.
A day's participation at the Melabev club, including transportation and
lunch, costs NIS 75 ($25), but "people whose condition gives them
eligibility under the Nursing Law are subsidized, and we've never turned
anyone away because of an inability to pay."
Funding also comes from the Labor and Social Affairs Ministry, the Jewish
Agency and the Jerusalem Municipality.
In September Bernice Schwartz will be holding a series of free workshops
in Jerusalem on how memory works and how age affects it, and will offer
tips for improving memory. For further information, contact (02) 655-5049.
By JUDY SIEGEL, Jerusalem Post.
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